Toohil to Introduce Cockayne Syndrome Awareness Month Resolution on June 11
: State Rep. Tarah Toohil (R-Luzerne) is scheduled to present a resolution on the floor of the Pennsylvania House of Representatives designating June as “Cockayne Syndrome Awareness Month” in the Commonwealth. Cockayne Syndrome, or CS, is an extremely rare, and always fatal, genetic disorder that affects only a small number of children worldwide. CS is characterized by short stature and an appearance of premature aging. Children with the disease have small heads, impaired nervous systems and sensitivity to sunlight.
: Toohil’s guests, CS patient Juliann Tompkins of Nanticoke, and her parents, Christina and Brent Tompkins, will be introduced during Toohil’s remarks.
: Monday, June 11, 1 p.m.
: Pennsylvania House of Representatives, State Capitol, Harrisburg.
NOTE: The House session will be carried live on the House Republican Caucus website, www.pahousegop.com
, and on the Pennsylvania Cable Network (PCN).
Media contact: Rep. Toohil’s Office, 717.260.6136